Our charity came into being following the death of a young boy, Richard Cooper. Richard was diagnosed with a rare degenerative disease, Ataxia Telangiectasia, the effects of which quickly led to increasing disability. In October 1995 Richard also developed cancer and in the following 17 months endured frequent hospital admissions and intensive treatments with unpleasant side effects.
During the final weeks of his life both Richard and his Mum wanted to avoid going back into the stressful hospital environment. Remaining in their home they faced long exhausting and anxious days and nights. They were unable to get adequate professional support or practical help, at the time when they most needed it.
Through their own strength, determination and courage they achieved their wishes and on 13th March 1997, aged just 11, Richard died peacefully at home. |